Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Monday, February 13, 2012

Cold Hands Warm Heart

I wake in the night and listen. The reassuring rumble tells me that the furnace is still on. It’s good news and bad. It means we have heat and there’s still oil, but at this hour I visualize the dollar bills that might just as well be fuel.


I don’t fall back to sleep easily. A glass of water, and check on the dogs, curled like Danish pastries on their pillows. I’m awake and afraid in the cold night. My fear of cold has an ancient echo. I listen for the furnace at night the way my Polish ancestors woke in their huts to check on the fire.

With only 29 days, February is the longest month, and we secretly count it down.  February is to winter what Wednesday is to the workweek: If we can get through February, even snow in April won’t rock us. 

In many wedding albums there is a picture of the groom carrying the bride over the threshold. That odd custom is also about staying warm. In ancient times when a woman left her father’s home and was set down on the hearth in her new house she was in the most important spot in any ancient home. She literally kept the home fires burning. 
 
Temperature is part of my own married romance. Coming to New York from Baltimore –where there is just one decent snowstorm each year--I too was set down on a new hearth. I married a man who comes from Northern Ontario where winter runs from September to May and wind chill is scoffed at. “When Canadians have 30 below, they mean it, he says; “Wind chill is for wimps”. 

So to marry this tundra man I had to learn to dress for cold. To get me from the Inner Harbor to the frozen Hudson he plied me with jackets and sweaters, scarves and gloves, even a hat with earflaps. 
But physical acclimation is real. That first winter, living in upstate New York, I thought I’d die. My boots were good below freezing but my fingers could barely tie them. Each year it gets easier. Now I complain about the cold, but no longer imagine myself part of the Donner party.

But there is also an emotional acclimation to cold. A quote of Camus is taped inside the cabinet where I get my coffee mug each morning. It says: “In the depth of winter, I finally learned that within me there lay an invincible summer.” Some days that tells me that I have enough beach memories to cling to on the slippery slope of February, and other days it is the word “invincible” that reminds me that living cold does indeed build character.

But having a warm house is important. I can’t swear that my first marriage ended solely over the thermostat setting, but for years I never went on a second date with a man whose response to my “I’m cold”, was “Put on a sweater”. Now I’m married to a man who knows that cold hands do not mean a warm heart, and that a big oil bill is better than roses. But surprisingly, I’ve grown too. I am willing, in this new life and climate, to go and put on that cost-saving sweater.

The word comfortable did not originally refer to being contented. It’s Latin root,  confortare, means to strengthen. Hence it’s use in theology: the Holy Spirit is Comforter; not to make us comfy, but to make us strong. This then is February’s task. We may not be warm but we are indeed comforted; we are strong and we are counting the days. 

Sunday, December 4, 2011

The Bridge of San Luis Rey

Most of us know Thornton Wilder from the play, “Our Town”—every town and every high school does “Our Town” sometime and it’s worthy. I keep an excerpt from Emily’s after death speech on my wall at work—to remember.

But here is a bit more Thornton Wilder that is also for us in Cancer Land. This is the last paragraph from his novel, “The Bridge of San Luis Rey:

“We ourselves shall be loved and then forgotten. But the love will have been enough; all those impulses of love return to the love that made them. Even memory is not necessary for love. There is a land of the living and a land of the dead and the bridge is love, the only survival, the only meaning.”

Monday, October 24, 2011

Loves Long Walks on the Beach

This weekend felt like a good Hallmark card or a bad Match.com posting. A beautiful fall weekend on Cape Cod. On the drive there we laughed listening to Tina Fey “Bossypants”. Ate steamers and fried clams and blueberry pie. John did chores. I hit the jackpot at TJ Max. And we had long, long walks on the beach. Holding hands. Laughing. We saw a friend’s new house. Went to the movies. Felt so grateful for our lives. This is one of those times when it feels like the clouds parted. I feel grateful for every struggle and every minute of therapy that got us here. Not that I want to relive any of it. No, but I do love long walks on the beach

Tuesday, May 17, 2011

Relationships and Cancer

Relationship and cancer. Relationship with cancer. Relationship when you know your heart will be broken--but not before it is healed and opened wide. Take a look at this relationship and cancer story from today's New York Times.


http://video.nytimes.com/video/2011/05/16/health/100000000821590/love-endures-all-even-cancer.html?nl=todaysheadlines&emc=thab1

Thursday, August 26, 2010

Le Marriage

We are married. A small wedding. Our families and the close friends who have been our support for several years. Laughter, tears, cancer as a wedding guest—everyone recognized cancer as one of the attendants. We wrote vows that included being faithful—yes, I know—and that included “in sickness and in health”—knowing what that really means. We had great food, a lot of poetry, books, statues of Mary, our dear stuffed Babar and blue ribbons everywhere.

Then we flew to Paris and walked and ate and walked and ate and made love with windows wide open in the City of Lights.

Tuesday, August 10, 2010

My Hero

I’ve been debating all day about whether I can write this. “Too corny”, I thought. And “maybe I won’t feel this way tomorrow”. No, of course not; I’ll feel something else tomorrow. But today—all day—I thought, “He is my hero”.

John is my hero. We have been through so much crap with cancer and divorce and just life in the past two years that I sometimes forget that we have been friends for more than ten years. Ten years of coffee and books and ideas and laughter and too many cookies and cupcakes and hearing each other’s work questions and the juggling of reading and writing for both of us. We met as teachers and became friends, pals, annoyances, confidants, secret fantasies, outright fantasies, refusals, comforters, advisors, infatuations, lovers and partners. But always friends.

Now hero.

He is my hero.

Corny? Yes. But after all of the above corny is great!

Wednesday, July 7, 2010

Chemo Love Therapy

Kisses that last at least ten seconds and hugs of at least six seconds increase the flow of oxytocin and serotonin. Oxytocin is the love chemical that promotes bonding, and serotonin, as we all know, is the happiness drug.

XOXOXOXOXO

Thursday, June 3, 2010

All's Unfair in Love and Baseball

Did you watch baseball last night? Did you see the end of the almost perfect game? We changed channels to be there, to see the moment, to witness baseball history. What we saw instead was heartbreak but also baseball history.

Tiger’s pitcher Armando Galarraga threw a perfect 8 and 2/3 innings. On the last ball the hitter makes contact and runs but Galarraga takes the ball to first and tags him out. The whoops begin but are cut short by the almost instant safe call by umpire Jim Joyce.

Shock everywhere. TV viewers could see it was out but the umpire called safe. Game over. Perfect game squelched. I rolled on the floor in pain. Sympathy. Empathy. Seeing something taken away unfairly.

That’s the part we can all relate to. The unfairness of it all. Galarraga did everything he was supposed to do. He was supposed to be celebrating today. But he’s not. It was unfair. Love and baseball and life are unfair. Marriages should not end especially “perfect” marriages of 20 and 30 years where everything seemed, at least, to be perfect should not end. But they do.

People fall in love with the most unexpected others. People get hurt. There is no instant replay except at the watercolor and at the bar and the family reunion where it’s like a sports talk show when everyone can trash the ex. And kids get hurt too and they are really just innocent bystanders. It’s unfair. All of it. But that’s why we love baseball. Even when it hurts as bad as it did last night it’s still a great game and it is just life.

Sunday, April 4, 2010

God is Love is Sex is God

Church, passion, kneeling at communion. Our shoulders and hips touch but our prayers are private and intimate. God forgive me, change me, heal me, bless him, show me. Bread in wine, flesh and blood and we eat it kneeling. Devour a man’s body and juices on our knees. We drink blood. Absolute carnality, absolute intimacy, absolute love.

Rising we are healed, saved, restored.

We reenter our pew and he grips my hand so hard. There are tears in his eyes. He chokes, “I love you.”

We come home to the New York Times, mocha coffee and Italian pasties from Bella Napoli. I’m reading about palliative care and he is in front of me, tears again, kissing me, tugging at clothes.

“Is there any greater compliment than a man who wants to f*** you?”asks Helen Gurley Brown.

And he does. And we do. Laughing, grunting, crying all over each other’s bodies, mouths, hands, fingers, legs.

Finally tired and hungry.

God is love. Sex is love. He is risen today. Amen

Monday, December 14, 2009

Life is so good and so Hard

Life is so good and so hard.
The people I have loved,
Those I have left
Those who have left me.
The people he has loved,
Those he has left,
Those who have left him.

Friday, February 13, 2009

Am I Loved?

We are getting ready for a long weekend. I remind myself that this matters to him. He wants this time as much or more than I do. I say to myself, “Get it”. Something in me would convince me otherwise. I think about past relationships when I did not believe I was loved—or loved enough—despite evidence to the contrary. Some old veil in my heart? Some old old message that tried so hard to convince me that I am not loveable. It seems like that would be a problem for me and it is, but it’s also a problem for those who love me. It is as if I am deaf and staring at the mouth moving before me…I sense something but I can’t get it. It is a kind of blindness and a kind of deafness. It limits me but also frustrates others.

I look at this passage from Luke that sits near my computer:

“And those who had seen it told how he who had been possessed with wild demons was healed.” Luke 8:36.

I believe; God help my unbelief.

Sunday, November 23, 2008

Love After Chemo

Chemo is over and even though some fear remains, and even though there is still a CAT scan and blood work to get through, I don’t want to miss this: Six months of chemotherapy is over. He did this with style and grace. It is true that adversity doesn’t build character, but rather reveals it and in this prolonged adversity his strong character was revealed. He did not miss one day of work. He did not whine or complain. When other people admired his courage he reminded them that he was just doing what was in front of him. He also very graciously and very gallantly said that being the person with cancer is easier than being the caregiver. The person with cancer gets all the sympathy and all the breaks. He is right about that.

He says it feels like he’s out of prison. Chemo ended just yesterday so the side effects of this recent round are still here (fatigue) and still to come (more mouth pain and neuropathy). But it is uphill from here.

Love in the time of cancer: Still love. Still time.

Sunday, November 16, 2008

Long Talk About Love

Could we even remember what began the conversation? This morning I can’t. It began Friday night—maybe Friday morning. It involved concert tickets, an old girlfriend, coming late to dinner, a clash of calendars, and what a particular word meant. Ah, the devil of two people who love words and who think that language really, really matters.

There was talking then crying. I cried, he cried, I cried, we cried. There was yelling, “Fuck you” from both parties both under the breath and then loud enough to shake the neighbors.

There was “You don’t listen”, and “No, you don’t listen”. Then there was careful and concentrated listening. There was “This is what I am trying to say” as we both struggled to form the right words and struggled inside ourselves for—“What is it that I really want to say?”

We moved together and apart. Went to meetings, practice, errands, and the kitchen. Clothes on and clothes off. The hope appeared in the form of laughter—finally—even as we were saying, “Fuck you.” “Really”, he says, “That’s what I want.” “We should only fight naked” is my suggestion. “Then I’d keep trying to piss you off” he wisely offers.

The love never left the room is what I know now. We talked for days, spiraling then circling, coming back to “This is what I want.” Then a gentle night and lovely, comforting skin on skin. We wake in peace and he goes to get our Sunday donuts and the New York Times.

Sunday, August 31, 2008

My Moon is in Cancer

The problem is cancer. Stage three colon cancer and so instead of romantic dates and lunches and vacations we have surgery and doctors offices and learning about chemo. I am lover and caregiver, but I am also a writer and fierce about what is happening to him and to me and to us. I am writing this blog to tell my side of this story. I am not objective. I am not unbiased and at times I am not a very nice person. But then, cancer is not very nice either.

I am also writing this because I hope at least one person can have their sanity confirmed by this blog. Most of the official cancer resources have tried to be helpful but there have been so many gaps and so many platitudes and so very much condescension. I am also writing this because as Mark Twain said, “I don’t want to hear about the moon from a man who has not been there.” Loving a man with cancer is my moon. Take the next step with me.

Saturday, August 30, 2008

Everything Works (plus recipe)

Yesterday I got my hair cut. I have gone to the same lovely spa and salon for many years. Jean, The owner, is French is wonderful at connecting with his customers. When we learned about John’s cancer and chemo I told Jean and asked if he could do something for John—thinking he’d need a much shorter hair to get ready for losing it. The day John came for his special spa haircut all the stylists and their assistants were checking him out. He is very handsome, but it turns out that they all wanted to watch because the gal cutting his hair was giving her first haircut! So there was plenty of audience to cheer her on and to cheer John up.

Because of that Regine, the woman who cuts my hair, knows the story and the situation. When I see her we always talk first about John—his hair, his chemo and how he feels. So yesterday as she’s running her hands thru my hair and we are talking about the color and whether I need highlights again—she is telling me, “You won’t believe this…” Her best friend has just started dating a man with Colon Cancer. Her friend is in her 50’s and the new man is in his 50’s and he has colon cancer and has just completed his chemo. He is happy and they are happy etc. etc.

Then Regine leans closer to me and says in a soft voice, “My friend says everything works.” Pause. Then “You know what I mean? Everything works.” I pause. And then I get it. Her friend told her that sexually—with the new boyfriend with cancer—“everything works.” I laugh. She adds quickly, “Not that it’s everything but it matters, no?”

Yes it matters, I’m glad too that “everything works”.

Recipe:

Regine suggested this recipe for cooking salmon. I made this last night and it too works supremely well:

Marinade salmon filets for one hour in a mixture of half maple syrup and half teriyaki sauce. Bake at 375 skin side up for ten minutes. Turn them over and pour remaining marinade on top. Bake five more minutes at 400. The maple will caramelize on the salmon. Serve with mashed potatoes and asparagus or broccoli.

Friday, August 29, 2008

I am Sick of Him

I sit on the floor in the restroom at the oncology center and cry silently. I feel my life slipping away. I write this in my journal:


I am sick of him.

I am sick of the New York Yankees.

I am sick of his music.

I am sick of the apples he likes.

I am sick of his schedule.

I am sick of the movies he wants to see.

I am sick of him being sick.

I am sick of him.

Thursday, August 28, 2008

Chemo is Coming

Tomorrow is Chemo Day again. John will spend four hours at the oncology center then wear the infusion pump for the next 48 hours. I am nervous each time. What will the blood work say? He has been more tired and his mouth is sore more often now. The pain and tingling in his hands is more frequent so I think that means that the chemo is digging in. Does that mean it’s “working”? Killing cancer cells or just killing all of his fast reproducing cells?

I am recognizing my own unsettledness on this day before chemo. I have the logistics down: I pack the bag: we take books and magazines to read, I take extra magazines to leave at the chemo center (they have terrible magazines there—all about cancer) I also pack our I Pods and snacks for both of us, and take the Blue notebook for taking notes when we meet with the doctor. In this day before chemo I am also bracing myself. I lose him during these chemo weekends and the loss gets longer each time.

He’ll be distracted on Friday, and annoyed by the pump and side effects on Friday and Saturday. The tiredness will begin Saturday so he’ll take more naps and be more drowsy. It’s hard to feel connected in those days. I get needy and so I have learned to make plans for the weekend now.

Being at home watching him sleep on the couch or being aware that he has more pain makes me feel lonely and afraid. Each time I lose a bit more of him and each time I am reminded of how serious this is. I have to watch my own anger too. A couple of sessions ago I realized that in the pre-chemo days I get stirred up and angry. I’m mad at chemo and mad at cancer but it’s so easy to forget that cancer is the problem and instead think that John is being unkind or inattentive or to start to make a case that he is not committed to this relationship. My fears stir and I flail inside. My head starts to tell me that he doesn’t love me, that he will leave me. My heart knows that cancer and chemo are taking him away.

Wednesday, August 27, 2008

Keeping Secrets

In Alcoholics Anonymous we hear, “You are only as sick as your secrets.” The French say, “Nothing is so burdensome as a secret.” My daily meditation book says, “Secrets are a quiet cancer that eats away at our souls.”

That cancer word jumps off the page. I have known the cost of secrets in my life. There were many secrets I kept from others over the years and saw the cost to relationships. I also endured the damage of keeping my family’s secrets: my mother’s addiction, my father’s shame.

But today I know that the most damaging –and most frightening--secrets are the secrets I keep from myself. I worry now, maybe too much, but I fear this: am I telling myself the truth. Am I hiding my real feelings? Not just from John but from me. That’s the big danger.

I have decisions to make. Will I accept the fellowship that means a month away? Will I continue on in my graduate program? If I do is it because I really want these things or is it because other people think I should? If I don’t is it because of John’s cancer or because I am afraid to be away from him now? Am I giving up a part of me that matters or am I grateful for the excuse to give it up? The outsides may look the same but knowing what I really want and need --and telling my self the truth –matters.

Another secret I sit with: I miss my husband. What does that mean? Can I stand to feel that all the way through me? It feels sad and dangerous to allow myself that truth. But I also know that if I shrink from at least telling myself that truth I’ll be in more trouble later. Can I separate admitting that truth from acting on that truth? How will I know?