The Amy Winehouse House
A couple of weeks ago we visited a local cancer support
center to see what services might be
available. The house is lovely and there are many activities, support groups,
yoga, shared meals etc. But about 30 minutes into the orientation I picked up
the whiff of overriding condescension that accrues around cancer. Part of it is
the pastel and pretty approach to surroundings but it’s also apparent in the
tone of voice that is used by staff. It’s a cross between the voice you use
when talking to a small child and the voice one uses talking to someone in the
midst of a psychotic break. The other hint at condescension is the two-handed
handshake: the staff member takes both of your hands in theirs. This is
accompanied by the long, deep gaze, which immediately feels like someone told
the staff how important it is to make eye contact and that “people with cancer
need to be seen.” Well, they are going to make dam sure you know you are seen.
But the greatest tip off to the fact that once you have
cancer you’ll never be treated like a competent adult again is revealed in the
list of activities offered. At the cancer center, the counselor told me--with that
kindergarten teacher lilt in her voice, “We get together on Thursdays and make
smoothies!!” Smoothies. As I told John on
the way home, “I have never made a smoothie in my life so why would I make
smoothies in someone else’s kitchen with a group of strangers just because you
have cancer?”
That smoothie was the turning point for me and it set me to
thinking about the kind of cancer support place I’d like to create. So here is an introduction to my new cancer
support organization: The Amy Winehouse House:
We believe that cancer and its treatment is fierce and so
everything around it should meet that fierceness head on and not back down into
pastel prettiness. We don’t coddle and we don’t play word games. We don’t parse
“living with” versus “dying from” cancer.
At The Amy Winehouse House we are not nice and not pastel.
We don’t believe that having cancer makes you nice or pastel either. If you
were an ass before you got cancer now you are an ass with cancer. We don’t ask
you to share, process, make crafts or drink smoothies. We offer no bookmarks or
anything that has or requires a crocheted cover.
All activities at the Amy Winehouse House are optional and
include:
Making martinis
Strip poker night
Learning how to hot wire a car
Our book group is currently reading “Snuff” by Chuck
Palahniuk
We have a smoking room
(if you have cancer and are going to die we want you to
enjoy a cigarette on us.)
On Saturday nights we have strippers. Yes, for girls too.
And we certainly do have drug education. We think of this as self-chemo. Our role
model, Amy Winehouse, was an expert on self-chemo. Our self-chemo classes explain
how to smoke crack and how to play the cancer card to score some medical
marijuana. Our movie nights include pornography. (After all, cancer is pornographic so why get
all puppyish and pastel about something that is violent and intrusive.)
In future entries I’ll explain the Board of Directors and
our policy for volunteers. (We don’t have tee shirts but you do have to wear
eyeliner.) We’ll also talk about why we hate Lance Armstrong (We call him “One
Ball” around the House.) We have bracelets too, but ours say, “Fuck Cancer.”
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