Sunday, March 11, 2012

Basho on Ancient Caregiving


On the road from Palm Beach….

On this trip I’ve been sampling Kindle’s new short pieces of writing and read Jane Hirschfield’s wonderful essay on “The Art of Haiku” and Japanese haiku master, Basho.

Basho—poet, samurai, and Zen master—wrote and taught in the 1680’s. So when, in her essay, Hirschfield writes about his emotions struggles caring for family I sat up and said, “Wow…even then caregiving was hard.”

In describing his later years when he was caring for an ill nephew and was frequently sought out by more students and fellow poets for help (haiku in its Basho perfected form is a kind of spiritual/psychological process)…. Basho wrote:

“Crushed by other people’s needs, I can find no calmness of mind.” This from a Zen master! After the nephew’s death Basho shut himself off for a year to recoup his peace of mind and his own health.

Caregiver stress in the 1690’s. That helped me to see—again—that it is a human phenomenon—not a personal weakness or a feature of modern culture.

Wednesday, March 7, 2012

Letting Go

There is so much letting go to practice. Cancer Land brings letting go of John, his health, his doctors, the outcomes--many little outcomes (tests, appointments, complaints)  and the big one--death. But there is so much more letting go I have to practice and so much of it is about other people.

I've read more than a dozen books about letting go and I can't count the hours and dollars of therapy. I don't discount any of that. It's helped and it's moved me forward and it's also made me more aware of how much more I need to let go. Melody Beatty is my favorite writer on this topic. She writes about addiction and recovery and codependency but "letting go" is the theme.

To be able to let go I have to be able to let go to something else or into something else. For me that something else is God, so I realize how much I need that relationship, and to have that relationship I need spiritual practices in my life.

I'm grateful that I have friends who I can talk to about God and faith and prayer and meditation. Last night I had one of those conversations with a good friend. We talked about our relationships, the ones with real live men and the ones we have with God. That's intimacy.

But this morning I come to letting go again. Maybe letting go of other people and what they think  is a spiritual practice. I can say the words. I can pray for help. But my behavior tells me where I really am.

Thursday, March 1, 2012

Art and Death: Holding Our Own


I watched this extraordinary documentary with three good friends this week. I had seen this film in a class on Caring for the Grieving last year and I was so moved I had to have my own copy. I tracked it down and made a movie night. It’s not everybody’s idea of a chick flick—but really, in a sense this is the ultimate love story and a heartbreaker that makes you happy to cry a lot.

Holding Our Own is about fabric artist Deidre Scherer who creates  “paintings” from her real life sketches of people who are dying. Her work is extraordinarily beautiful and her craft amazing in the ways she creates super-realism in portraiture using layers of fabric. But the other beauty is her belief in and her philosophy of the role that death plays in life.

The second focus of this film is the Hallowell Chorus in Burlington Vermont. Hallowell is a group of amateur and professional singers who volunteer to sing at deathbeds and in hospitals with people who are near death. Again, no, it doesn’t sound like fun but in fact this is stunning.

Watching this extraordinary film with close friends led us to an intimate conversation about our beliefs in life after death, and what we might like for our funerals and our desires for the way we’d like to experience the end of our lives.

Holding Our Own was produced by Paul Newman and it’s available from Netflix or can be purchased on Amazon. It’s a fabulous intersection of creativity and death—which is to say generation-- or life and death.

Tuesday, February 28, 2012

Why Doctors Die Differently

Look at this article from Sunday's Wall Street Journal. Doctors--even those that treat cancer--make different choices than their patients. Because they know some stuff. This is a great reminder of a key concept in cancer caregiving and care. A doctor will only answer what you ask and you have to ask very specific questions to get very specific answers. If you say, "Will this chemo help me?" the answer might be yes. But if you ask, "Will this chemo specifically and significantly improve my life expectancy and quality of life?" the answer might be different.

Read this. Food for thought.

http://online.wsj.com/article/SB10001424052970203918304577243321242833962.html?mod=googlenews_wsj

Sunday, February 26, 2012

Why Women Love Bull Durham


The past couple of nights I have been watching Bull Durham. This is the movie from 1988 with Kevin Costner playing an aging catcher in the minor leagues. This is a movie that appears to be about baseball life with its travails and hopes and the desperate desires of men who want to play ball for a living. It is seemingly a men’s movie with all the swearing and ass slapping and drinking and real life baseball lore. But no, this really is THE all time best chick flick.

Yes, we love Kevin Costner from the first moment he arrives in the locker room wearing his navy blazer, rumpled white shirt and the khakis that are the perfect shade of tan with a hint of olive. He’s a manly man who in the first 20 minutes gives the fabulous, if too artful, monologue about his beliefs which includes, “I believe in the cock, the pussy, the small of a woman’s back…that the novels of Susan Sontag are self-indulgent, overrated crap”, and which ends with his belief in “long, slow, deep, soft, wet kisses that last three days”.

Yes! You had us at “long, slow and deep”—and yes, at the Susan Sontag critique too.

But there is a later scene that truly outs women for what they really want.“Do you want to dance?” Sarandon asks Costner, sitting in the kitchen late at night. He says yes, but surprises her by not dancing but instead by sweeping all the food and dishes off the kitchen table onto the floor. He spins Sarandon onto that now empty table and they go at it rolling and clutching.

Oh, that’s part of it. We want a man to want us that much; we want a man who wants to make love a second time so much that he goes for it on the kitchen table. We do want that kind of passion in our lives. But, there is something else in this scene that truly makes this a women’s dream come true.  What most women truly desire is not what Costner does, but what Sarandon does NOT do. As all of her dishes and the leftover food crash onto the floor Sarandon allows herself to be swept onto that table instead of diving for a broom, or a dish cloth or saying to her lover, “Hold on just a second, I’ll clean this up and then meet you in the bedroom.”

No, she is in the moment and desires this man and this sex more than she desires a clean floor or neat kitchen. She wants the rapture of this man and his body even with cereal and milk oozing under the fridge. And she is not saying, “Oh God that was my mother’s china bowl.” Nope, she’s on that table fucking her brains out.

Oh, to be that kind of woman. We assume the power is in the man, that to be taken that way would free us. But what we see in Bull Durham is a woman who CAN be taken. She is not a woman thinking, “When did we last wash these sheets?” while a man is going down on her.

Oh, we do wish for a partner to love us with such sweet abandon, but Sarandon, in Bull Durham, shows us a woman who can abandon herself. 

Thursday, February 23, 2012

Dating in CancerLand

"Dating and Desire"--Here's an article that appeared in several papers yesterday. The topic is dating when you have cancer. It's a young people's issue and a not-so-young-people's issue as well.  If married sex with cancer is hard to talk about --think about this. Maybe send this link to your favorite oncologist and say, "Come on!"

Click on the link below to read more



http://www.newsobserver.com/2012/02/20/1872402/disability-and-desire-how-to-navigate.html

Monday, February 20, 2012

The Cottage Weekend

This weekend we made our pilgrimage to The Cottage in Lenox. It's an annual trip and an anniversary celebration. Each year it's a measure of how we are. We have gone there in terror (year one), in joy, in exhaustion, in lust, in chemo and in total silliness (my favorite).

Each year we pack a huge bag of books, magazines, and the Kindle. And even tho the owner of the B&B feeds us well we take extra desserts (cannoli) and extra breakfast (scones). And I take my red licorice (and some red lace). Then we lock our selves in for 2 and a half days of reading and relaxing.

On the way home we hit the used bookstores in Lenox, Stockbridge and West Stockbridge for more books. This year my great find was a first edition of "Death was The Other Woman" by Linda L. Richards. How could I pass up a title like that?