Showing posts with label CancerLand. Show all posts
Showing posts with label CancerLand. Show all posts

Wednesday, August 12, 2020

Life Changes Fast


Life changes fast. It’s one of those things that we understand intellectually but don’t fully grasp until something big happens. Those of us in CancerLand know this. 


We have at least one memory of a perfectly fine day—until the phone rang, or until the doc came back into the room, or until a nurse said, “The doctor would like you to stay for a few more minutes.”

 

Many years ago, on September 11th in 2001 we all got it.  Then again in 2005 with the Indonesian Tsunami. Then in 2012 with the shooting at Sandy Creek Elementary School.

 

Those incidents were huge, but now they seem to come faster: a shooter, a bomb, a natural disaster. But the aftereffect doesn’t stay with us as long each time. It’s as if there is a half-life of consciousness after having a couple of these “Life is short” experiences.

 

That is true in CancerLand as well—now we brace ourselves for the next news, the next scan, the next colonoscopy or mammogram. We have quiet, whispered conversations with ourselves that go like this, “OK, if this is bad news I’m going to go to Paris first.” Or “If this is bad news I won’t tell anyone for a week—I have to sort it out myself.”





We know that bad things happen in the greater world too. 

We keep reading about how life makes these sudden shifts for other people.

 

We know it happens more frequently in other countries—and in places where people don’t look and sound like us. But when it happens in Colorado, Connecticut, Arizona or Ohio-- places where the skin tones and consonants are more like ours, we get it again, and fast. 

 

As much as we believe that life follows rules like, “What you put in is what you’ll get out,” we are shown again and again that planning denies life’s absolute uncertainty.

 

Your life will change in an instant, in a New York minute, in the blink of an eye, and on a dime. 

 

I’ve seen it happen in the lives of people I love. A friend lost her home and everything in it--burned to the ground. All gone: checkbook, toothbrush, computer, family Bible. Not even a pencil left to tally all she lost. Her family was safe, and for that we say, “Thank God”, but really…

 

Another friend was crossing the street. The light was green. She remembers stepping into the intersection, then--days later--regaining consciousness in the ICU badly broken.

 

Another friend was taking a quick bike ride before work, a car turned left, she was in the blind spot. So beautiful, so young, so gone. A family devastated.

 

What about the to-do lists in their handbags? Their responsibilities at work? And the library books they always returned on time?

 

Twice I had to suddenly look at my life in a new way. Both times doctors holding clipboards were my wake-up call.

 

I’d always measured myself by my work, but that changed quickly. Someone asked me, “What about your career?” and I answered, meaning to be flip but surprising myself with the truth, “I don’t have a career, I have a life.”

 

That insight had incubated over time by too many funerals and too many days in Intensive Care waiting rooms watching family members die.  That was an incredible wisdom school—and in many ways a gift—but that’s a school with a very steep tuition.

 

So, in the midst of the shootings and terrorism, and this COVID-19 virus gobbling human lives like Pac Man, there may be a bit of buried treasure. 


While we can’t control everything that happens to us, we do get to make choices. We can love others, we can allow ourselves to be loved, and we can say Yes much more than we say No.

 

One day it might be that lone package on the train, or a screech of tires, or a fever and a cough that won’t quit. Or that call-back from the doc. Knowing we might die can paralyze us or it can liberate us.

 

Life changes fast. So, what do we do about that?

 

I vote for living it. Starting right now.

 

 


Tuesday, October 28, 2014

The Amy Winehouse House

This is one of my all time favorite posts. I wrote it at the start of John's cancer tour and it still makes me smile to see the fierceness I found for myself in CancerLand:


The Amy Winehouse House             

A couple of weeks ago we visited a local cancer support center to see what services  might be available. The house is lovely and there are many activities, support groups, yoga, shared meals etc. But about 30 minutes into the orientation I picked up the whiff of overriding condescension that accrues around cancer. Part of it is the pastel and pretty approach to surroundings but it’s also apparent in the tone of voice that is used by staff. It’s a cross between the voice you use when talking to a small child and the voice one uses talking to someone in the midst of a psychotic break. The other hint at condescension is the two-handed handshake: the staff member takes both of your hands in theirs. This is accompanied by the long, deep gaze, which immediately feels like someone told the staff how important it is to make eye contact and that “people with cancer need to be seen.” Well, they are going to make dam sure you know you are seen.

But the greatest tip off to the fact that once you have cancer you’ll never be treated like a competent adult again is revealed in the list of activities offered. At the cancer center, the counselor told me--with that kindergarten teacher lilt in her voice, “We get together on Thursdays and make smoothies!!” Smoothies.  As I told John on the way home, “I have never made a smoothie in my life so why would I make smoothies in someone else’s kitchen with a group of strangers just because you have cancer?”

That smoothie was the turning point for me and it set me to thinking about the kind of cancer support place I’d like to create.  So here is an introduction to my new cancer support organization: The Amy Winehouse House:

The Mission of The Amy Winehouse House is: Fuck Cancer

We believe that cancer and its treatment is fierce and so everything around it should meet that fierceness head on and not back down into pastel prettiness. We don’t coddle and we don’t play word games. We don’t parse “living with” versus “dying from” cancer.

At The Amy Winehouse House we are not nice and not pastel. We don’t believe that having cancer makes you nice or pastel either. If you were an ass before you got cancer now you are an ass with cancer. We don’t ask you to share, process, make crafts or drink smoothies. We offer no bookmarks or anything that has or requires a crocheted cover.

All activities at the Amy Winehouse House are optional and include:

Making martinis
Strip poker night
Learning how to hot wire a car
Our book group is currently reading “Snuff” by Chuck Palahniuk
We have a smoking room
(if you have cancer and are going to die we want you to enjoy a cigarette on us.)
On Saturday nights we have strippers. Yes, for girls too.

And we certainly do have drug education.  We think of this as self-chemo. Our role model, Amy Winehouse, was an expert on self-chemo. Our self-chemo classes explain how to smoke crack and how to play the cancer card to score some medical marijuana. Our movie nights include pornography.  (After all, cancer is pornographic so why get all puppyish and pastel about something that is violent and intrusive.)

In future entries I’ll explain the Board of Directors and our policy for volunteers. (We don’t have tee shirts but you do have to wear eyeliner.) We’ll also talk about why we hate Lance Armstrong (We call him “One Ball” around the House.) We have bracelets too, but ours say, “Fuck Cancer.”