No Saints in CancerLand

Yesterday I gave a class for caregivers. The one thing I told them and that I am adamant about is this: You must never allow anyone to call you a saint.
Saint and all of its companions: selfless, good, wonderful and other praiseworthy words are traps for caregivers. Yes, we know what people mean when they say words like that but it’s a trap. If you are a caregiver and someone says, “You are a saint”, you must snap and bark and hiss and slap and say “No”. You must say “I’m no saint; in fact, I’m a real bitch sometimes.”

The danger to taking in those well-meaning words is that soon—sooner than you’d think—you start to feel like you should be good and you should be a saint and that means that the anger, the sadness, the inequity and most critically, the resentment will get pushed below the surface. When that happens you lose yourself—and in fact, become a not very good caregiver because your most creative energy is used up in keeping the truth hidden from yourself.

The best caregivers can say they are angry, resentful, hurt and –the biggie—that they wish caregiving was over. Sometimes “over” means their person gets well and sometimes “over” means their person dies. Wishing for it to be over is not unloving and it is not uncaring; it’s just a real, honest feeling for a human being stressed to the max.

For years I cared for my brothers. One was dying of ALS and one was dying of Anti-Trypsin Disorder. Two horrible diseases. Some people in my life said all the “saint” “good” and “wonderful” words. I survived because I had two people who could hear my truth. I had one person to whom-- when my brothers care was especially hard—I could say, “If he doesn’t die soon I’m gonna kill him.” That friend also knew that I cried myself to and from Pittsburgh every weekend and who knew the devastation of losing my big brothers. But my sanity was saved by being able to say the truth of the moment in the moment.

If you are a caregiver you must find someone like that in your life or online. A place you can say, “I am no saint”. and “This sucks.”