Thursday, August 22, 2013

Poet Marie Howe in Albany September 17


For Albany readers: Here is an upcoming event that you should not miss. Marie Howe, poet, teacher, family caregiver and Poet Laureate of New York State, will be reading on Tuesday September 17th at The New York State Museum in downtown Albany. The reading begins at 8pm.

Marie is one of the most accessible poets—her language is direct and powerful. And she is a wonderful performer.

Mark your calendar. Invite a friend.

My favorite collection of Howe’s  poetry is called, “What the Living Do”. Here is the poem that gives its title to that book:


WHAT THE LIVING DO
by Marie Howe

Johnny, the kitchen sink has been clogged for days, some utensil probably fell down there.
And the Drano won't work but smells dangerous, and the crusty dishes have piled up

waiting for the plumber I still haven't called. This is the everyday we spoke of.
It's winter again: the sky's a deep, headstrong blue, and the sunlight pours through

the open living-room windows because the heat's on too high in here and I can't turn it off.
For weeks now, driving, or dropping a bag of groceries in the street, the bag breaking,

I've been thinking: This is what the living do. And yesterday, hurrying along those
wobbly bricks in the Cambridge sidewalk, spilling my coffee down my wrist and sleeve,

I thought it again, and again later, when buying a hairbrush: This is it.
Parking. Slamming the car door shut in the cold. What you called that yearning.

What you finally gave up. We want the spring to come and the winter to pass. We want
whoever to call or not call, a letter, a kiss--we want more and more and then more of it.

But there are moments, walking, when I catch a glimpse of myself in the window glass,
say, the window of the corner video store, and I'm gripped by a cherishing so deep

for my own blowing hair, chapped face, and unbuttoned coat that I'm speechless:
I am living. I remember you.




Monday, August 19, 2013

Yoga for Cancer and Yoga to Improve Sleep


Sleep and lack of sleep is an issue for cancer patients and for cancer caregivers. Chemo and infusion and pain and nausea interfere with patents being able to sleep, and a partner with cancer who is not sleeping makes sleep hard for cancer caregivers. There is also the beeping and the buzzing of infusion pumps, occasional alarms going off and even when they are not then there is the fear that they will.

I don't miss those days. But I member how much sleep it cost both of us. Sleep meds can be a help but they have dangers and side effects as well. And I was always afraid that if I took Ambien that I'd miss the chemo alarm or even worse, I'd  "wake up" Ambienated and who knows what would happen in that zombie state.

Here's an article that recommends yoga for improving sleep in Cancer Land. Take a look and try some gentle yoga. Of course yoga will help with more than sleep--it will also be an aid to the anxiety that accrues to patient and caregiver alike.

You can find introductions to yoga in every community center, library, YMCA and online and on YouTube. Here's the link:



http://psychcentral.com/news/2013/08/19/low-intensity-yoga-improves-sleep-in-cancer-survivors/58644.html

Friday, August 16, 2013

Golf for Good-- is Great


John is a terrific golfer and perhaps the hardest thing he faced with his surgeries and rounds of chemo and the dreaded FU  pump was that it made golf impossible for so long. It didn’t help that his surgeon (the surgeon, really!) would make friendly golf chat each time we saw her and then when asked, “Can I play golf yet?” would say, “No, not quite yet.” Grrrrr

Getting golf back was just as important as getting sex back. Hmmm, come to think of it the doctors weren’t very good at talking realistically about sex or golfJ

So it’s been a delight for John to have golf back in his game and that we can play this game together again.

This week we played in a charity tournament. That’s a first for us because I’ve been pretty shy about playing with other people—especially really good golfers. But we said yes to play for Unity House and Catholic Charities and to play together. And it was fun!

I think having to play fast made it easier for me, and knowing that it was a “best ball” scramble format meant I couldn’t hurt the team—so I stepped up, didn’t agonize and just hit the ball. And hit well to my surprise. And loved spending five hours on the course in the cart with John. I had no idea we could enjoy that so much either.

This week I have had a lot of gratitude for all we have been through—some of it pretty hard stuff—but it got us here and made us appreciate every moment we have together. If there is an upside to cancer this is a part of it.

Tuesday, August 13, 2013

Talking to the One You Love


One of the reasons that I will keep doing all of my personal growth work is that I love to keep on learning about myself. True, it can be painful when you have one of those moments (weeks/months) when you realize, "Ugh, how long have I been doing that?" And the "that" is something you have been doing for ages and not thought twice about.

I had one of those Aha! moments on vacation a few weeks ago. We were in Paris—City of Light and city of romance. We spent long days walking and doing museums and just going and going and of course, I got tired and then I got cranky. Now that also happens if I vacation with a friend but in this case I was with my dear husband and I realized (after several days) that when I got tired and cranky that I was speaking to him in a really mean voice. You know that voice--kinda whiny and blamey and with that "you are the problem” undertone? Yeah, that voice.

One night in the hotel room I heard myself doing it. Oh. And I thought, "If I was traveling with a friend--even if I felt awful or ill I might say how tired I was or that I was unwell but I would not use my "You idiot--it's your fault" tone of voice. And I thought, "So stop doing that right now." And then I thought, "This is a gift of my therapy and meditation practice--and I want this." I knew I was doing it; I wanted to stop; no excuses and no rationalizations. And I'm grateful for that.

Yes, there's a generous slice of humble pie to eat. Sure, but it is a kind of yummy pie when you realize you can actually change.

Saturday, August 10, 2013

A Very Married Romance

Saturday Night is date night...yes, both euphemistic and for real. This morning we planned our kind of romantic/intellectual night: Saratoga to our favorite book store, Lyrical Ballad and then to SPAC for Yo Yo Ma on the lawn.

But life happens and I went to work planning to stay a few hours and it turned into a whole day. And there are still errands to do before Monday. So this date night becomes one part adventure--a visit to the new Honest Weight Food Coop and one part fun--watching the Giants and Steelers preseason game ---(that is a showdown between his team and mine)  so maybe we can place some sexy bets and make it a little more "date-like" by going to a sports bar?

I have to keep reminding myself that we spent ten days in Paris to that accrues thousands of romance points in advance.

Tuesday, August 6, 2013

Widow--the Illusion of Being Prepared


We are just home from Paris. It was my birthday celebration and so I am reading everything about Paris while the images and addresses are familiar. It makes the reading so much more fun to read after rather than before.

Tonight’s book is “Paris, A Love Story” by Kati Marton—journalist and political correspondent. Her first marriage was to Peter Jennings and then, later, the great love in her life—a 17 year marriage to Richard Holbrooke. Paris was an important part of both marriages but it was Paris that was at the center of her romance with Holbrooke and crucially with her transition through grief after his death and into the next phase of her life.

I had picked up this book a few years ago but with some sense of voodoo I was afraid to read it when John was so sick. Magical thinking? Denial? I didn’t want to know or think about death and grief and widowhood.

Today I wonder if it’s the opposite—I read as inoculation, mental preparedness?

Don’t I know better? Nothing can prepare you. I know this from watching my mother’s grief and watching friends and yet, and yet. Maybe it’s kind of like building the cognitive life raft—I want to be ready…or maybe I just want to know that women survive when their husbands die.

There has been a lot of death in my life—parents, brothers, sisters, friends…so maybe it’s more top of mind? I know what a ringing telephone can bring. And just yesterday I was remembering my astonishment years ago when I learned—from a phone call—that my brother Larry had died—and I watched as my body bent completely in half before the news had even completely registered and I thought to myself, “My God, it’s true—we are literally doubled over by grief.”




Friday, August 2, 2013

Cancer & Careers

If you have cancer --or your partner has cancer-- it's likely that one of both of you are juggling cancer and caregiving and work issues. It's one of the secret struggles. Lots of shame and fear surround how to be OK at work and how to keep or return to a job. You need to know all the legal ins and outs like FMLA but you also need to know the political, emotional and psychological impacts.

Cancer & Careers is a nonprofit resource organization with that very focus. I'm posting the link below. Bookmark this in your favorites. Have you made a Cancer Resources bookmark folder yet? If not, do that now and add this one. It will come in handy. You can look up your questions, you can chat online, you can query HR professionals and keep your anonymity/confidentiality and you can attend their workshops and presentations--online and in person.

Here's the link to Cancer & Careers:

http://www.cancerandcareers.org/en/at-work

Wednesday, July 31, 2013

How To Talk to Your Ill Partner--More from Diana Denholm

Yesterday's post introduced Diana Denholm author of "The Caregiving Wife's Handbook" a super helpful reference and guide for a wife or partner caring for a husband or intimate partner. Of course--and we've heard it a million times--communication is key. But exactly how do you communicate your needs in a guilt and fear ridden environment like caregiving?

I found an interview with Dr. Denholm in which she gives specifics about how to organize yourself to talk to your partner. Click on the link below to read what she has to say about getting clear with yourself and clear with your partner.

Here's the link: http://www.caring.com/articles/caregiving-wifes-handbook

Monday, July 29, 2013

The Caregiving Wife's Handbook


This is a great book for you or for your friend who is a family caregiver. Yes, there are so many books and handbooks and workshops now for caregivers but still not enough that really attend to the marriage or intimate relationship between patient and partner.

“The Caregiving Wife’s Handbook” is written by Diana B. Denholm, PhD, LMHC. She is a board-certified medical psychotherapist so she covers a lot of ground in CancerLand. She knows cancer and other serous diseases; she knows medical professionals and their roles and perspectives and she knows families and couples who have been and who are in the thick of it. And she knows wives.

Like having a very close friend who is also a caregiver, Diana Denholm talks with us about the fear, anger, resentment and critically how to determine whether your caregiving is keeping your man dependent or if it’s appropriate to his actual needs.

One of my favorite chapters in her book is called “The Big C”…and C doesn’t stand for caregiving or for cancer—it stands for codependence. That’s another unspoken concept in CancerLand where martyrdom is celebrated and burnout rewarded. Not so for Denholm.

I’ll write more about this book and these helpful ideas in the next week.